Minority Mental Health Awareness Month

July is National Minority Mental Health Awareness Month. A crucial time to shed light on the mental health challenges faced by minority communities. While mental health disparities affect various marginalized groups, individuals with rare or chronic conditions within...

Mental Health Awareness Month

May is Mental Health Awareness Month. The unpredictable journey of life can throw us a lot of tough things sometimes. We are not born with a manual on how to navigate new challenges. In times of great stress, it isn’t easy to find tools to help your situation....

How To Advocate In A Medical Emergency

Advocating for yourself or a family member during a medical emergency is crucial but can be tricky. Crisis fries our nervous system and can stunt us from responding in a measured way. However, creating a plan ahead of time can allow us to have a guideline for how to...

Heart Health Month

As February is American Heart Month, it’s a good time to reflect on our heart health and find ways to become healthier. Living with rare disease and chronic illness can feel daunting and overwhelming. One of the most effective ways to manage the underlying symptoms of...

Women with Bleeding Disorders

  Women can and do have bleeding disorder. Historically women experiencing symptoms linked to bleeding disorders have been dismissed. Female patients are continuously gaslighted about their physical and mental health. While bleeding disorders affect both men and...

Mental Health Hotlines

Coping with a rare disease and chronic illness means more than just managing symptoms. The journey can feel isolating. Advocating your health or the health of your family members is a challenging journey. Filled with unique challenges. There is help available to you....